This post was originally published today on my family's blog, The Name Fitz. Two weeks ago, Mom and Dad and Dr. Thiel (the doctor we're working with in California) decided that Dr. Thiel needed to see Katelyn Grace as soon as possible. One week ago, Mom and Leslie left with the baby for California. They were gone for Mom and Dad's 25th wedding anniversary on the 18th, and will be gone for Christmas as well. Hopefully they will come home around the 28th or so. It will be our first Christmas separated. But we'll just reschedule! :D
Please pray for wisdom for Dr. Thiel. We believe he is a Christian, and he has been absolutely wonderful to work with. His son had both Down syndrome and epilepsy (a type called Lennox-Gastaut Syndrome, which is nearly impossible to control), and is now seizure free through his father's treatments.
Pray for Mom and Leslie. The Lord has been good in providing a good, safe, economical hotel, good rental car deals, and so many other things. Leslie has her kitchen set up in the hotel room, which is not an easy situation (and I speak from experience). They've had their hard days ... like the time there was a late-night Christmas party going on that kept them up half the night; then the keys got locked in the car the next day; and once they were finally on their way home, they missed the exit and ended up having to go miles out of their way. : ) But not all the days have been like that, thankfully.
Oh, and we have some good news! Leslie says that Katelyn Grace has maneuvered herself into a sitting position twice!!! All by herself!
We have really come to realize recently how dangerous these seizures can be. Actually, we're thankful in some ways that she's not crawling or walking. Any seizure would make her fall. And she has them all the time. Hopefully we'll figure them out before she becomes extremely mobile! Also, we're just praying that they're not causing brain damage.
Thank you for your prayers for our sweet little baby!
And Merry Christmas!
